Tuesday, April 9, 2013

Today I am Sad. . .

For the last several Tuesdays I've participated in "Travel Tuesdays."  I had planned to write a travel post today but something else is weighing on my mind so a little change of plans.

 Yesterday the world learned that Annette Funicello had died.  She had been diagnosed with MS since the late 80s/early 90s and the complications from it finally won out.

I am sad.  Annette was only 70 - young by today's standards.  Her life was taken all too soon.

When Annette was diagnosed with MS, over 25 years ago, much less was known about it and there were no treatment options available.

Thankfully for me and thousands of others diagnosed now - we have options.  I've been on Avonex since I was first diagnosed with MS and I've been relapse free since my original diagnosis.  That is due to the treatment I am on.  I'm sure of it!

This is why I walk.  This is why I fundraise.  This is why I harass encourage each of you to donate to my fundraising efforts.  The money that has been raised over the years has done AMAZING things.  Researchers have discovered so many treatment options that are working!  Incredible.  I only wish it hadn't been too late for people like Annette.  

How many more people have to die with complications related to MS before we find a cure?

Too many.

You can help.  I promise that your donation really does make a difference.  It leads to treatments that prevent the progression of MS.  I'm walking proof of that.

Did you know that .85 cents of every dollar donated goes directly to MS research and services?!

Today I am sad.  I am sad that Annette died.  I am sad that one of my patient's with MS died a few weeks ago.  I had known her and her family since I started working here.  She was so strong and fought so hard for as long as she could.  But in the end the MS won out.  She was only in her 50s and a mother of 4.  I am sad that my aunt's long time friend/colleague lost his wife to MS a few weeks ago as well.

That is 3 women in just 1 month.

Too many.  

Even though I am sad I have HOPE.  I have FAITH.  I KNOW a cure for MS will be found. . .

someday.

I only hope it is in my lifetime.

This past Sunday I participated in the Boston MS Walk for the 5th year.  You can read about that here.

In September I will participate in the MS Challenge Walk.  The Bean Team will walk 50 miles in 3 days on Cape Cod.  Each team member is required to raise at least $1,500.  

I walk for these 3 ladies.  I walk for me.  I walk for everyone living with MS.


Thank you.

xoxo 

8 comments:

  1. Oh wow. I didn't know much about her and certainly not that she had MS. So sad. I love how proactive you are about working for a cure for MS though! It's inspiring.

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  2. Jodi I heard about Annette's passing yesterday and was also saddened even moreso with how it is affecting you. Continue to have the spirit and positive attitude that you have - it is inspiring and I am sure will result in great things for you and the outlook of those dealing with all types of chronic illnesses xo

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  3. I did not know she had MS. RIP Annette. I'm glad you got out and posted this today.

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  4. Great post, Jodi! I am sad about Annette Funicello too. While reading her story several years ago, I remember it was the first time I learned about MS. Thank you for being such an amazing advocate and fighting for your health and the health of others! xo

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  5. I'm glad you discuss MS on your blog. I'm sure more people will get involved with walks, donating etc because of your posts.

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  6. so wonderful that you are talking about this. Brining exposure to MS is so necessary! It is so sad that Annette Funicello died.

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  7. I don't know if I told you that back in the 90s my sister was misdiagnosed as having MS (I'll explain the whole story when I come up in June). When we thought she had it, there weren't a whole lot of options. I'm glad that research has come a long way since then. Thank you for making others aware of it, and what they can do to help. I only wish I was closer to walk with you! I'll continue to support you any way I can!!

    XOXO!

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  8. I'm so sad about Annette too! And I'm sorry for the loss you've encountered this month. That's terrible.

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