Tuesday, March 15, 2011

Neurologist Appointment

Last Tuesday I had my neurologist appointment.  It was the first time I had seen my neurologist in 6 months which is the longest since my diagnosis (I think my neurologist missed me b/c he seemed so happy to see me!  Haha!)  I really like my neurologist (and all the staff at my MS center for that matter).  He always takes his time during our appointments and asks me how I'm doing and goes through each "area" then does a full neurological exam.  Even when I tell him I'm feeling good he is still so through and I appreciate that.  He thought I was doing great and said my exam looked great!  Woo hoo!  That is the kind of news I want to hear.

He sent me for lab work.  I need to have my liver function checked every 6 months due to being on Avonex.  I also asked him if we could check my Vitamin B12.  Not really sure why I asked?  Maybe just b/c I've read/heard a lot about this recently in the news.  I actually didn't even know the symptoms for deficiency.  Well it is a GOOD thing I asked b/c I am B12 deficient!  Then I decided to go online and read more about it. To my surprise I have MANY of the symptoms.  Who knew! 

Symptoms of Vitamin B12 Deficiency (from Web MD)

A deficiency of vitamin B12 can lead to vitamin B12 deficiency anemia. A mild deficiency may cause only mild, if any, symptoms. But as the anemia worsens it may causes symptoms such as:
  • weakness, tiredness or light-headedness  
  • rapid heartbeat and breathing
  • pale skin
  • sore tongue
  • easy bruising or bleeding, including bleeding gums
  • stomach upset and weight loss
  • diarrhea or constipation
If the deficiency is not corrected, it can damage the nerve cells. If this happens, vitamin B12 deficiency effects may include:
  • tingling or numbness in fingers and toes
  • difficulty walking
  • mood changes or depression
  • memory loss, disorientation, and dementia
I always blame "weird" symptoms to my MS but maybe some of them are due to lack of B12?  We shall see. My neurologist told me to start taking Vitamin B12 supplements and I'll have lab work again in 4 weeks to see if my levels have come up.  Some people need to do B12 injections so let's hope the oral vitamins work - I already do enough shots!

I have my next MRI in May which will be a year from my last MRI (which you should totally read about if you haven't).  My neurologist said if it looks fine I can see him in 6 months (from my March appointment).  But if there are new lesions which there could be he said "we'll talk."  Not sure what about but hopefully we won't need to worry about that!

My neurologist and I also discussed the new oral medication for MS.  He said some of his patients were taking it but that if Avonex is working for me he thinks I should continue and I totally agree.  So that is that (for now).

I will have to write about the therapy/service dogs that my MS Center has.  It is very exciting! 

I don't feel like writing more now.  Not sure what is w/ me but lately just can't find the energy/motivation to really write meaningful posts.  I have a bunch of "stuff" I want to write about but I'm just too tired when I get home from work.  So hopefully a few restful days in Florida will give me my spunk back!  Until then this will have to do!


  1. Have fun in Florida! That's great news about your appointment...I've been meaning to be tested for a B12 deficiency too because I've heard it can be pretty common.

  2. stopping by from mingle monday!

    thank you for sharing your story! i love when i can learn something from someone else!

  3. Glad your appt went well! And I totally hear you-- I've been lacking blog motivation recently. Don't know why. Hope you have an awesome trip to Florida! :)